The Chapter's Focus
The Colorado Chapter of the National Hemophilia Foundation (NHF Colorado) is responsible for addressing the challenges bleeding disorder patients and their families face through education, advocacy, and empowerment.
The Chapter's Vision
Our vision is to create an environment where those affected by bleeding disorders feel like part of a community, part of the solution, and empowered in their daily lives through connection with others who can relate to them and their challenges. The Colorado Chapter of National Hemophilia Foundation has served those affected by bleeding disorders for the state of Colorado since 1974.
Bleeding disorders are life-threatening, debilitating, and expensive to treat. A child with severe Hemophilia will spend over $200,000 annually to prevent bleeding. Some children and adults build up inhibitors to the treatment and the costs can exceed $1,000,000 per year. Failure to preventatively treat the disorder can result in prolonged painful bleeds that cause permanent and severe damage. Access to affordable and adequate health care is critical to being a self-sufficient, contributing member of society.
The entire family is affected by the bleeding disorder physically, emotionally, and financially. With over 35 years of experience, we provide programs and services to people affected by bleeding disorders so that they can better cope and can become self-advocates for themselves and/or their family. We partner with the University of Colorado Hemophilia Treatment Center, other agencies, and medical professionals to provide programs and services unique to those with bleeding disorders to best meet their needs.
National Hemophilia Foundation's Mission
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research.
Established in 1948, the National Hemophilia Foundation has chapters throughout the country. Its programs and initiatives are made possible through the generosity of individuals, corporations and foundations as well as through a cooperative agreement with the Centers for Disease Control and Prevention (CDC).
We were founded out of a need to raise awareness for voices not heard. We have continued to make a difference with the help of our donors and volunteers that make our mission possible. We look forward to your partnership as, together, we improve the lives of people with bleeding disorders.