State Advocacy Days

Celebrate March As Bleeding Disorders Awareness Month!

March is nationally recognized as Bleeding Disorders Awareness Month. Join NHF Colorado in celebrating and honoring the bleeding disorders community. In 2016, thanks to your advocacy efforts, March was officially designated as Bleeding Disorders Awareness Month.

How To Get Involved

If you are on social media, you can update your Facebook or Twitter profile picture with a supporting ribbon. Use the hashtags #BDAM and #BleedingDisordersAwarenessMonth when posting to help our cause go viral.

You can also help raise critical funds for your local Coloradoans by starting a fundraiser! Creating a fundraiser can be as easy as a few click of the keys through Facebook Fundraisers. Another fundraising tool possibility is to use the Unite Your Way site to turn your passion into funds and awareness.

State Advocacy Days: Friday March 4, 2022

State advocacy days are one of the major highlights of local chapter advocacy programs. During these advocacy days, NHF teams with local chapters, volunteers, and other organizations to host a day at the state capitol. The event usually consists of a training session for volunteers where we provide talking points and engage in role-playing activities. Training is followed by a day at the capitol where volunteers meet with their elected officials to educate them about hemophilia and related bleeding disorders. Constituents may visit representatives for various reasons including to educate them, build relationships, thank them, and advocate for or against a piece of legislation.

State advocacy days give elected officials the opportunity to learn firsthand from affected individuals and families how expensive treating bleeding orders can be, and how important it is to have access to comprehensive care and continuity of care. Legislators learn how not having access to the proper treatment can be detrimental to the health of someone with a bleeding disorder, and potentially cost the state a lot of money in the long run.

Putting a face to hemophilia makes a significant impact.


2022 State Advocacy Day

There is strength in numbers, and you matter. On Friday, March 4th members in the bleeding disorder community will gather to meet with their local legislators to share their stories and concerns. Whether you are interested in sharing your story or sitting back to listen – your presence is crucial to the cause. As we advocate for the rights of bleeding disorder patients, we hope that you are standing there next to us.

8:00 – 9:00 AM Advocacy Training, Old Supreme Court Chamber on the Second Floor

9:00 – 11:00 AM Legislator Meetings

Advocates invited to chamber or floor to hear tribute readings

12:00 PM *possible group lunch (depends on legislative meetings)*

*Chapter COVID Policies: NHF and national chapter face-to-face meetings and events (indoors and outdoors) will require that all attendees, including NHF staff and sponsors age 12 and older, show proof of being fully vaccinated or a negative COVID-19 PCR test within 72 hours of attending the event. Additionally, for indoor events, all attendees must wear masks regardless of vaccination status. NHF strongly recommends that all attendees wear masks at outdoor events as well, but hosts should follow the strictest guidelines – either CDC, local, regional, or state guidelines. Lastly, all attendees will be required to complete a health screen for admittance to events.

*State Capitol COVID Policies: On-site Rapid COVID testing may be required to enter the Capitol or Chambers and will be provided outside of the South entrance. Social Distancing and masks are required in the Capitol. By registering for this event you agree to abide by the current requirements by the State of Colorado at the time of the event.

1385 S. Colorado Blvd. Suite #610
Denver, CO 80222

© Colorado Chapter National Hemophilia Foundation 2023

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