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As a leader in the bleeding disorders community, we offer programs and services to raise awareness and make a difference for people living with bleeding disorders and their families. The health and well-being of our guests, our guides and the communities we visit is always our top priority. In response to the COVID-19 outbreak, we've worked tirelessly to enhance the health & safety precautions for every NHF Colorado program, day trip and event. With these changes in place, we can now offer some newly innovated events for some of our most popular programs—with more to come soon.
As the State of Colorado starts to regain a sense of normalcy, the Colorado Chapter would like to remind all community members of the safety protocols we have as we return to in-person events. Please visit our COVID-19 Resource Page for details.
Updated June 2022: NHF is committed to ensuring the safety of our staff, volunteers, and the community we serve. These NHF Event Guidelines are one way for us to demonstrate that commitment. While participating in events held or sponsored by the National Hemophilia Foundation (NHF), consistent with CDC guidelines, participants are encouraged to be fully vaccinated against COVID-19, practice hand hygiene, “social distancing” and wear face coverings to reduce the risks of exposure to COVID-19. At the present time, NHF no longer requires proof of vaccination or a negative PCR test for people of any age as a condition of event participation, which includes both indoor and outdoor gatherings. Exception: due to intimate proximity and the extended duration of summer camp, NHF CO does require all campers to demonstrate proof of vaccination. NHF National Chapters, including Colorado, must follow local, state, or CDC masking guidelines, whichever is MORE strict, which means guidelines are subject to change per event on short notice based on the event location and event structure. NHF cannot guarantee that its participants, volunteers, partners, or others in attendance of events will not become infected with COVID-19. Please reach out directly to the Chapter to clarify any aspect of this policy.
In this time of uncertainty it is more important than ever to stay UNITED. NHF Colorado is committed to providing updated resources and tools for the community.
We want to hear your feedback so we can continue to serve you to the best of our abilities during this time. Please fill this quick survey and let us know your thoughts (your answers will be anonymous).
Attended an event recently? Let us know how we're doing!
What better way to bring people together and let loose than riding bikes and toasting a job well-done at Boulder's most creative craft breweries? This is a fun, easy, tasty adventure pedaling along mostly flat, paved paths away from traffic and a few short distances on bike lanes or quiet roads. Besides visits to inspiring local breweries, your group will enjoy views of the iconic Flatirons,
historical landmarks, mural art, and even wildlife!
This is a fun, relaxed, scenic adventure pedaling along mostly flat, paved paths away from traffic and a few short distances on bike lanes along roads. Must be 21+ to attend.
Included in registration:
Local, friendly, and knowledgeable guides to provide safety, guidance, best route selection, and fun facts along the way.
Option to rent bikes, helmets, or locks to be provided for adults. Bobos Bites Granola Bars will be available for all.
Guests to Bring their Own: A full belly! Lunch is not included! Water bottle, Backpack, Hat & Sunglasses, Shoes with tread (for the hike), Rain jacket and an extra layer for inclement weather. If you are providing your own bike, please also bring your own helmet.
REGISTRATION DEADLINE: October 13, 2022
Presented by: Dr. Amber Federizo
Sponsored by: Octapharma
Come hear Octapharma medical expert Dr. Amber Federizo, APRN, FNP-BC, talk about the past, present, and future of understanding and treating bleeding disorders in women. Learn about historical views of hemophilia A and von Willebrand disease (VWD), the genetics and prevalence of the two bleeding disorders, and the signs and symptoms of the conditions in women. Get the
the good news about how bias against women, treatment gaps, and stigma are slowly being eliminated thanks to new and ongoing research.
About Our Presenter
Dr. Amber Federizo, APRN, FNP-BC is Factor My Way Nurse Educator at Octapharma USA. She has dual certifications in Hemostasis and Family Practice, with a special interest in women with bleeding disorders and menstrual and sexual health.
This program is designed to give ALL members of the family unit a chance to learn or practice self infusion skills under the supervision of the HTC team. This includes caregivers, partners, and the patient themselves! Become independent in this safe and supportive environment!
Food and beverages will be provided
Join us for the second annual Zoo and You Holiday Party! Join us Tuesday, November 29, at the Denver Zoo for a semi-private viewing of the magical zoo lights throughout the evening. Enjoy warm hot cocoa and snacks during the social time beginning at 5:30 PM before a brief State of the Chapter beginning at 6:30 PM. Afterward, enjoy a beautiful stroll through the Zoo, taking in the unique lights during this exclusive showing.
More information coming soon!
Your voice matters! Community members – those directly affected by or living with someone affected by a bleeding disorder – are stakeholders in our work and your opinion and experiences are essential in shaping the direction of the Chapter. Join us as for discussions on state and federal policy issues and trends that currently are, or may in the future, impact the bleeding disorders community. We will reflect on current healthcare concerns, consider long-term priorities, and develop strategies with action plans that ensure continued access to quality, patient-centered treatment care remains available for our rare patient population. A look at the current health disparities and inequality in the bleeding disorders community will also be explored. NO EXPERT KNOWLEDGE OR EXPERIENCE REQUIRED – just bring your vision and voice. We would be honored if you would join us!
Kick off the new year with an exciting way to challenge yourself – AXE THROWING! Are you looking for some fun and connectivity with other men in the bleeding disorder community? Then look no further! We invite you to join us for BLEEDERS AND BLADES on Tuesday, December 13 at 6:00 PM! Join the other men in your community for an opportunity to strengthen or learn a new skill. We will learn proper throwing techniques and games from experts at Primal Axe house.
Event Audience: ALL men in the bleeding disorder community – directly impacted or caregivers! *ATTENDANCE DOES NOT REQUIRE YOU TO THROW**
Registration includes dinner and 2 hours of throw time. This is an in-person event that you do not want to miss!
*NOTICE* While the likelihood of getting cut by an axe is low when people follow the rules, it is a physically exerting sport. We highly recommend participants pre-dose if they have a target joint and/or bring a dose in case of an injury.
Please complete the mandatory waivers at the link below (the link will also be included in your confirmation email)