Program & Event Calendar

You’ll always know what’s going on with our organization.

Just bookmark this page and check back often for the latest programs and events.

As a leader in the bleeding disorders community, we offer programs and services to raise awareness and make a difference for people living with bleeding disorders and their families. The health and well-being of our guests, our guides and the communities we visit is always our top priority. In response to the COVID-19 outbreak, we've worked tirelessly to enhance the health & safety precautions for every NHF Colorado program, day trip and event. With these changes in place, we can now offer some newly innovated events for some of our most popular programs—with more to come soon.


As the State of Colorado starts to regain a sense of normalcy, the Colorado Chapter would like to remind all community members of the safety protocols we have as we return to in-person events. Please visit our COVID-19 Resource Page for details.

Update October 1, 2021
NHF and national chapter face-to-face meetings and events (indoors and outdoors) will require that all attendees, including NHF staff and sponsors age 12 and older, show proof of being fully vaccinated or a negative COVID-19 PCR test within 72 hours of attending the event. Additionally, for indoor events, all attendees must wear masks regardless of vaccination status. NHF strongly recommends that all attendees wear masks at outdoor events as well, but hosts should follow the strictest guidelines – either CDC, local, regional, or state guidelines.
*Please note that all scheduled events are subject to change with little notice due to the ever-changing COVID situation in Colorado. Changes may include, but are not limited to, different vaccination or testing requirements, canceling in-person events in favor of virtual events, and limiting attendance to in-person events.

In this time of uncertainty it is more important than ever to stay UNITED. NHF Colorado is committed to providing updated resources and tools for the community.

We want to hear your feedback so we can continue to serve you to the best of our abilities during this time. Please fill this quick survey and let us know your thoughts (your answers will be anonymous).


NHF CO Connections Program is designed to welcome and support newly diagnosed families of infants and young children ages 0-8 years old with bleeding disorders with community connections and provide resources. We are excited to launch Connections, Coffee, and Conversations – a virtual connection group to provide support, resources, and connections to those newly diagnosed with a bleeding disorder.

The Connections program is meant to alleviate the isolation and stressors that a newly diagnosed individual and/or family may undergo - not to provide any medical advice - but offer meaningful programs to connect you with other individuals and families within our diverse bleeding disorder community. 

Join us for the kick-off event of the Connections Mentorship Program! Taking place virtually over the lunch hour, we invite families from all walks of life to join us for this engaging and inspiring hour. Book Author, Nikole Skappe will join us for a short reading of ‘Super Seven’ – A Story for Rares.

‘Twelve-year-old Tanner has a rare bleeding disorder and somethings feels like no one understands what he’s going through. Does this sound like you? Super Seven: A Story for Rares, is a book about a kid with a rare bleeding disorder for children with rare bleeding disorders.’ We will discuss how this book can help generate conversations about some of the themes of the book, including sports, disclosing your bleeding disorder, and school issues.

All attendees will receive a $10 Einstein’s Gift Card, a copy of Super Seven, and a discussion guide (one of each per household). You will receive a Zoom link to the event after you complete registration.

Wednesday, February 9, 2022
6:00 pm8:30 pm
Primal Axe House 3545 S Platte River Dr. Unit M-1 Sheridan, CO 80110

Kick off the new year with an exciting way to challenge yourself – AXE THROWING! Are you looking for some fun and connectivity with other women in the bleeding disorder community? Then look no further! We invite you to join us for BLEEDERS AND BLADES on Wednesday, February 9th at 6:00 PM! Join the other women in your community for an opportunity to strengthen or learn a new skill. We will learn proper throwing techniques and games from experts at Primal Axe house.

Event Audience: ALL women in the bleeding disorder community – directly impacted, carriers or caregivers!

Registration includes dinner and 2 hours of throw time. This is an in-person event that you do not want to miss!

*NOTICE* While the likelihood of getting cut by an axe is low when people follow the rules, it is a physically exerting sport. We highly recommend participants pre-dose if they have a target joint and/or bring a dose in case of an injury.
Please complete the mandatory waivers at the link below (the link will also be included in your confirmation email)

*COVID Policies: NHF and national chapter face-to-face meetings and events (indoors and outdoors) will require that all attendees, including NHF staff and sponsors age 12 and older, show proof of being fully vaccinated or a negative COVID-19 PCR test within 72 hours of attending the event. Additionally, for indoor events, all attendees must wear masks regardless of vaccination status.

Wednesday, February 16, 2022
12:00 pm12:45 pm
ZOOM LINK PROVIDED UPON REGISTRATION COMPLETION

Your education is an investment in your future. At the Colorado Chapter of National Hemophilia Foundation, we offer two separate scholarship opportunities and have a supportive team that will help guide you through the financial aid opportunities available. Join members of the Scholarship Committee on Wednesday February 16th for an opportunity to learn more about the program and how to best apply.
A Zoom link will be provided upon completion of your registration.

Saturday, February 26, 2022
1:00 pm3:00 pm
Evergreen Lake. 29612 Upper Bear Creek Road Evergreen, CO 80439

We will not skate around the point – we want YOU to join us at Evergreen Lake on Saturday, February 26th for some ice-skating fun and hot cocoa! Did you know that skating is said to be more beneficial than cycling and running for joint health? Through gliding and synchronized movement of the legs, ice skating works for every major muscle group in the body, especially the joints.

Whether you are interested in strengthening a skill or learning something new, we invite you to TRAILBLAZE with Backpacks + Bleeders over ice! Registration includes ice skate rentals, a private warming hut and ice rink for two hours!

NOTE: Consistent with NHF COVID Policy, all participants aged 12 and older must demonstrate proof of vaccination or a negative PCR test within 72 hours of the event. Contact us directly with questions.
YOU AND YOUR BLEEDING DISORDER:

Backpacks + Bleeders empowers individuals to get active with their bleeding disorder! This means knowing when to factor up beforehand for intense activity. No matter the activity we recommend having on hand an emergency dose of factor – accidents happen and we plan to be prepared! You know your body best – are you prepared for this activity? Do you have an active target joint? Do you have a joint with low mobility? It is always a good idea to ask your local Physical Therapist if they believe you are ready for the planned activity!

Tuesday, March 1, 2022Wednesday, March 2, 2022

NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2021, Washington Days had more than 400 volunteer advocates from 45 states that met with legislators and staff to discuss federal funding for bleeding disorder programs and support policies that increase the affordability of coverage and access to care. The issues and priorities for 2022 Washington Days will be announced at the start of the new year.

Please note that Washington Days 2022 will be an entirely virtual experience. Washington Days programming will take place during the dates of March 1-2.

Preparatory webinars were hosted for the 2021 event. Similar webinars are planned for February 15, 2022.
Beginner advocates (0-1 times attending prior Washington Days): February 15, 2022, at 2:00-3:00 EST
Advanced advocates (2 or more times attending Washington Days): February 15, 2022, at 3:30-4:00 EST

Monday, March 7, 2022
6:30 pm8:30 pm
Bowlero Cherry Creek 6767 Leetsdale Dr., Denver, Colorado 80224

Join us for the second ever MEN’S CONNECTION GROUP event on Monday, March 7th! This event is designed for men to connect and engage with other men in the bleeding disorder community. Whether you’re a seasoned bowler or believe in using the bumper rails – this event is for YOU! There is no time to SPARE, register today!

Registration includes replenished appetizers and 2 hours of bowl time. This is an in-person event that you do not want to miss!

*NOTICE* While the likelihood of getting hurt when bowling is low when people follow the rules, it is a physically exerting sport. We highly recommend participants pre-dose if they have a target joint and/or bring a dose in case of an injury.

*COVID Policies: NHF and national chapter face-to-face meetings and events (indoors and outdoors) will require that all attendees, including NHF staff and sponsors age 12 and older, show proof of being fully vaccinated or a negative COVID-19 PCR test within 72 hours of attending the event. Additionally, for indoor events, all attendees must wear masks regardless of vaccination status.

Whether you are a seasoned skier/snowboarder or trying for the first time, this is a terrific opportunity for you and your family! With spring peeking out on us there is still plenty of time to enjoy the snow. March and April historically being the snowiest time of the year offers a fantastic opportunity to learn and/or strengthen a new skill with your bleeding disorder community!

REGISTRATION COMING SOON!

NOTE: Consistent with NHF COVID Policy, all participants aged 12 and older must demonstrate proof of vaccination or a negative PCR test within 72 hours of the event. Contact us directly with questions.

YOU AND YOUR BLEEDING DISORDER:
Backpacks + Bleeders empowers individuals to get active with their bleeding disorder! This means knowing when to factor up beforehand for intensive activity. No matter the activity we recommend having on hand an emergency dose of factors – accidents happen and we plan to be prepared! You know your body best – are you prepared for this activity? Do you have an active target joint? Do you have a joint with low mobility? It is always a good idea to ask your local Physical Therapist if they believe you are ready for the planned activity!

Wednesday, April 20, 20221:00 pmSaturday, April 23, 20225:00 pm

HFA is excited to host their first in-person Symposium since 2019 in San Antonio, TX. The HFA team is bringing you the latest information on medicine and technology, mental health care, Spanish resources, access to financial resources, barriers to care, and so much more.

This event is not hosted or supported by NHFCO. Please visit the website below for more information and registration for this event.

Sunday, May 8, 20228:00 amWednesday, May 11, 20225:00 pm

The WFH is pleased to officially invite you to the WFH 2022 World Congress—the first major hybrid event in the international bleeding disorders community! Registration is now open, and so is the call for abstracts. Organized by the World Federation of Hemophilia (WFH) and hosted by the Canadian Hemophilia Society (CHS), the WFH 2022 World Congress will take place from May 8 to 11, 2022, in Montreal, Canada, and virtually through the Congress platform. The in-person component of the hybrid Congress will be hosted at the Montreal Convention Centre (Palais des congrès de Montréal), with select sessions being broadcast through our virtual platform.

This event is not hosted or supported by NHFCO. Please visit the website below for more information and registration for this event.

Thursday, May 19, 20221:00 pmSunday, May 22, 20222:00 pm

The Coalition for Hemophilia B Annual Symposium is not an NHFCO event. Please visit their website at the link below for more information about this conference.


1385 S. Colorado Blvd. Suite #610
Denver, CO 80222

© Colorado Chapter National Hemophilia Foundation 2022

Crafted by Firespring