NHF’s Community Voices in Research (formerly MyBDC) connects the experiences of people with bleeding disorders and their family members to researchers investigating improving treatments and care.
How does it work?
|Benefits for the Bleeding Disorders Community
|People with bleeding disorders and their immediate family members and caregivers
|Healthcare professionals and investigators who wish to learn more about a specific area. All research requests are reviewed prior to acceptance.
|The ability to send targeted surveys to CVR participants. All responses are reported back to them in a de-identified, aggregate (combined) manner to protect CVR participants’ privacy.