State Advocacy Days

Colorado Statehouse Day 2018 is Friday, March 16! 

Registration is now open and can be found HERE

Program Highlights:

  • Advocacy training & 'How to Talk to your Legislator' from NHF public policy experts & professional lobbyists;
  • Presentation on current Colorado political landscape and healthcare policy issues;
  • Education of 'How to Craft Your Story';
  • Breakfast Monday morning at the Capitol with legislators;
  • Opening remarks from Rep. Joann Ginal, a longtime healthcare advocate;
  • Guided conversation with YOUR legislator! Great for the WHOLE family!

*Program note: This is for ALL bleeding disorder patients and their families. Hemophilia, vWD, platelet dysfunctions, rare factor deficiencies are all welcome!

Details:

  • Thursday March 15th: Advocacy Training (mandatory in order to attend Capitol Day): 5:00pm-7:00pm
  • Friday March 16th: Captiol Day: 7:00am-1:00pm

*A hotel room will be provided to participants traveling more than 50 miles from Denver. 

Funding provided by The National Hemophilia Foundation & Genetech


State advocacy days are one of the major highlights of local chapter advocacy programs. During these advocacy days, NHF teams with local chapters, volunteers, and other organizations to host a day at the state capitol. The event usually consists of a training session for volunteers where we provide talking points and engage in role-playing activities. Training is followed by a day at the capitol where volunteers meet with their elected officials to educate them about hemophilia and related bleeding disorders. Constituents may visit representatives for various reasons including to educate them, build relationships, thank them, and advocate for or against a piece of legislation.

State advocacy days give elected officials the opportunity to learn firsthand from affected individuals and families how expensive treating bleeding orders can be, and how important it is to have access to comprehensive care and continuity of care. Legislators learn how not having access to the proper treatment can be detrimental to the health of someone with a bleeding disorder, and potentially cost the state a lot of money in the long run.

Putting a face to hemophilia makes a significant impact.

 

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