Skip to main content

State Advocacy Days

Colorado Statehouse Day 2020 is Friday, April 17! 

Join us as we celebrate World Hemophilia Day! 

Program Highlights will be announced soon!

Join us and let your voices be heard! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

We will host an Advocacy Training on Thursday, April 16th in the chapter office. Here we will learn effective techniques on how to successfully share your story and let your voice be heard! The Program Highlights and key issues will be posted soon. THIS SESSION IS MANDATORY. Food and beverages will be provided.

**If you are traveling over 50 miles a hotel room can be provided**

*Program note: This is for ALL bleeding disorder patients and their families. Hemophilia, VwD, platelet dysfunctions, rare factor deficiencies are all welcome!

Details:

  • Thursday April 16th: Advocacy Training (mandatory in order to attend Capitol Day): 
  • Friday April 17th: Capitol Day:  

State advocacy days are one of the major highlights of local chapter advocacy programs. During these advocacy days, NHF teams with local chapters, volunteers, and other organizations to host a day at the state capitol. The event usually consists of a training session for volunteers where we provide talking points and engage in role-playing activities. Training is followed by a day at the capitol where volunteers meet with their elected officials to educate them about hemophilia and related bleeding disorders. Constituents may visit representatives for various reasons including to educate them, build relationships, thank them, and advocate for or against a piece of legislation.

State advocacy days give elected officials the opportunity to learn firsthand from affected individuals and families how expensive treating bleeding orders can be, and how important it is to have access to comprehensive care and continuity of care. Legislators learn how not having access to the proper treatment can be detrimental to the health of someone with a bleeding disorder, and potentially cost the state a lot of money in the long run.

Putting a face to hemophilia makes a significant impact.

 

KEEP UP TO DATE AT OUR PROGRAM & EVENT CALENDAR

Advocacy Day Sign Up
Will you be able to attend the advocacy training Thursday, March 21st at 6pm?