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On March 16th we will hold the second annual Colorado Statehouse Day for Bleeding Disorders at our beautiful State Capitol in Denver. You and your family will get the opportunity to speak to your local representatives about bleeding disorders and the issues that are critical to our community.
No experience or prior knowledge of the issues necessary! This is a guided experience provided by NHF Colorado and the National Hemophilia Foundation. Training will be provided Thursday evening, March 15th, to prepare you for our time at the Capitol!
Advocacy training & 'How to Talk to your Legislator' from NHF public policy experts & professional lobbyists;
Presentation on current Colorado political landscape and healthcare policy issues;
Education of 'How to Craft Your Story';
Breakfast Monday morning at the Capitol with legislators;
Opening remarks from Rep. Joann Ginal, a longtime healthcare advocate;
Guided conversation with YOUR legislator! Great for the WHOLE family!
*Program note: This is for ALL bleeding disorder patients and their families. Hemophilia, vWD, platelet dysfunctions, rare factor deficiencies are all welcome!
Thursday March 15th: Advocacy Training (mandatory in order to attend Capitol Day): 5:00pm-7:00pm
Friday March 16th: Captiol Day: 7:00am-1:00pm
*A hotel room will be provided to participants traveling more than 50 miles from Denver.
Contact Amy in the office with any questions!
Social Factor and Backpacks & Bleeders are having a mashup program!
This event will be an indoor educational "Do it yourself" Workshop that will teach you the 10 wilderness essentials when going outdoors! We will be putting together a DIY backpack that you can take home after the program! All you need to bring is yourself and anyone else interested in learning more about the Backpacks & Bleeders program and being in the outdoors.
Lunch will be provided
Please contact Sean with any questions!
Join us for a weekend of fun and education! This is a time for families and individuals to come together in a short two-day conference that encompasses what it means to learn how to live with a bleeding disorder. Sessions include basics about bleeding disorders and making healthy decisions for you and your family as well as current events that affect individuals and families with bleeding disorders. Plus, there’s great food and social networking time! The little ones have their own fun programming so you can concentrate during sessions and teens have programs geared towards healthy, positive life development.
Please contact Sean in the office with any questions!
Mount Falcon Castle Trail is a 7.9 mile heavily trafficked out and back trail located near Morrison, Colorado that offers the chance to see wildlife, gorgeous views of Red Rocks, and historic ruins. This route is rated as moderate and offers a number of activity options. Dogs are also able to use this trail but must be kept on leash.
HFA's 2018 Annual Conference
Hemophilia Federation of America's annual conference is scheduled this April in Cleveland Ohio. More information available at a later date
2018 is bringing back the Self-Infusion Clinic program!
This program is designed to provide an opportunity for patients, parents, spouses and other family members to practice or learn self-infusion skills. This program is open to all diagnoses and any severity as well. Hemophilia, Von Williebrands Severe, Mild. It doesn't matter. If you want to learn Infusion skills this is the program for you.
Food is also provided at the program.
To Register click the "Register Now" button in the upper right corner.
Please contact Sean with any questions!
¡Este será el primer programa español del año! Únase a sus compañeros de habla hispana en la comunidad para una noche de educación y desarrollo comunitario.
Los representantes de la industria también estarán allí para responder cualquier pregunta que tenga.
La cena será provista
¡Te veo allí!
Colorado Family Camp
Camp Forms Available Now! Click the related link below!
Family Camp provides families affected by bleeding disorders an opportunity to bond with their families and peers. Participants will have a chance to meet others in their home state that are experiencing some of the same health issues, helping them to develop a stronger support system and benefit from the emotional health of individuals within a family unit.
Family Camp is a program that is designed for all members of our community and it is rare to find a program that serves across the board here in Colorado. Family Camp is designed for families; specifically for families with children younger than camp age, men & women suffering from bleeding disorders themselves and their families, and young adults.
Mile High Summer Camp Leadership Retreat
Summer Camp forms available now! Click the Related link Below!
The Leadership program serves male & female campers from ages 14-18. This program is built to foster independence and leadership skills not only with their bleeding disorder but throughout every aspect of their life. The Leadership campers serve as role models to the younger campers by leading program activities, assisting with cabins, and helping them learn self-infusion skills with the assistance of trained HTC nurses.
The Leadership retreat weekend is in collaboration with the Breckenridge Outdoor Education Center (BOEC) where they learn outdoor and leaderships skills from professionals. This weekend also provides a time for the older campers to learn and bond with their peers.
Siblings are also welcome on the leadership retreat as long as space permits. See our siblings policy in the link below.
Contact Sean with any questions!
Mile High Summer Camp
Summer Camp forms available now! Click the Related Link below!
Mile High Summer Camp is a camp hosted by The Colorado Chapter of the National Hemophilia Foundation and The University of Colorado Hemophilia & Thrombosis Center. Mile High Summer Camp serves campers affected with hemophilia, von Willebrand’s disease, and other rare chronic bleeding disorders from Colorado, Wyoming, Montana, and Nebraska.
At Mile High Camp, our vision is that our campers (ages 7-18) will embrace our camp values in order to one day take personal responsibility for their own lives and become strong advocates for their own care. Through a camper-centered program that focuses on the premise of keeping campers and staff safe, respected, and loved, we intend to empower our staff and campers to achieve these goals.
Please contact Sean in the office with any questions
NHF's 70th Annual Bleeding Disorders Conference
NHF’s 70th Bleeding Disorders Conference will be held October 11 - October 13, 2018 in Orlando, Florida at the beautiful Orlando World Center Marriott. Join us for three days full of educational sessions, networking opportunities, and access to our exhibit hall. Registrations include entrance to our Opening Session, Awards Luncheon, and our exciting Final Night event. Childcare is available for children under 12 years old.
Registration now open! Please click the link below for further information!