You’ll always know what’s going on with our organization.
Just bookmark this page and check back often for the latest programs and events.
Join us March 8th at Winter Park for BLEEDERS ON THE SLOPES!
We challenge you to join your bleeding disorder community to discover and strengthen your outdoor winter skills. To make this possible, NHF Colorado is providing a full ski experience at Winter Park that includes lift ticket, rentals, and a $20 food voucher that can be used at all Winter Park owned areas. There are only 50 lift tickets available and 25 lessons available so act fast!
1. Lift Ticket and Rentals- $15 includes day lift ticket, rentals, (50 available), TO ATTEND YOU MUST BUY THIS TICKET.
2. Optional Half Day Lesson- Free for those directly affected with a bleeding disorder, (25 available).
As with all Backpacks + Bleeders activities, you will receive valuable education on how to best treat your body to reach new heights in outdoor experiences*. This is an amazing way to experience the Rocky Mountains TOGETHER as a community. HALF DAY LESSONS are available for those DIRECTLY affected by a bleeding disorder!
A one-time $15 fee per person is required to complete registration and enjoy the total ski package.
Event participation is limited to adults and children 6 and older.
Children 12 and under MUST be accompanied by an adult at all times.
Check-in will begin at 8am in the Sack Lunch Zone area in the West Portal Station Building. This is the same building that the rental shop, NSCD Office and where the medical clinic is located.
8:00-8:25AM-- Check-in at the Sack Lunch Zone area in the West Portal Station Building, rental fitting and continental breakfast
8:30-9:30AM-- Backpack + Bleeders Group Meeting
9:30AM--Receive lift tickets and food vouchers
9:30AM-4:00PM: Open skiing – enjoy the slopes
9:45-11:45AM-- Half Day Lessons – for eligible members who desire
We will be working directly with the NSCD or the National Sports Center for the Disabled to ensure that EVERYONE has a chance to hit the slopes. Adaptive equipment for all is available. It is also available to have an "Inclusion Lesson" where a NSCD instructor will focus 1-on-1 with the individual to help ensure the best results. This is a great fit for someone with ADHD, autism or other learning disabilities.
What to bring:
Snow jacket, snow pants, gloves, hat, goggles
**If you do not have googles it is recommended to rent or purchase in Denver. Winter Park does NOT rent goggles or snow jackets**
We recommend that you do not bring valuables. If you do lockers are available for $8 a day down the stairs from the Sack Lunch Zone.
Parking comes on a first come first serve basis. We recommend parking in the North Bench parking lot which is located at the second stoplight when entering the area. Once you park in the North Bench parking lot you will cross over a walkway bridge of Winter Park Drive. The West Portal Building will be the first building on the right.
**There are handicap accessible parking is located on the east side of Winter Park Drive in the Moffat Lot at the Resort base adjacent to all activities or in the Village garage.
Plan for two hour commute from Denver Metro or the Boulder region.
*Be sure to consult with your local HTC and follow your treatment plan*
**IF THE $15 REGISTRATION FEE IS A BARRIER PLEASE CONTACT HANNA AT HBEARY@HEMOPHILIA.ORG TO
Join us for this fun interactive dinner program at the famous Viewhouse! Here we will explore how to help maintain strong relationships through trust and connection.
This program was developed in partnership with the University of Pennselvania Positive Pyschology Center and is facilitated by a UPENN trainer, an expert in their field with a PhD or master's degree.
Bring yourself or family to connect with others in the bleeding disorder community over this fun dinner program!
Let's advocate on WORLD HEMOPHILIA DAY!
Join us and let your voices be heard! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.
We will host an Advocacy Training on Thursday, April 16th in the chapter office. Here we will learn effective techniques on how to successfully share your story and let your voice be heard! The Program Highlights and key issues will be posted soon. THIS SESSION IS MANDATORY. Food and beverages will be provided.
If you are traveling over 50 miles a hotel room can be provided.
*Program note: This is for ALL bleeding disorder patients and their families. Hemophilia, VwD, platelet dysfunctions, rare factor deficiencies are all welcome!
Lets unite as a community and become empowered through education and connection!
As an organization we are dedicated to the education and advocacy for our community. At this conference we bring the members together and offer multiple educational sessions for the bleeding disorder community and provide a space where you can have the opportunity to meet and network with other people who share a similar story.
This is a time for all members of the bleeding disorders community to learn innovative, best practices to manage their bleeding disorders. Sessions include bleeding disorders basics, medical advancements, state/federal updates, and addressing your physical/mental needs, and nutrition and health.
Registration will be available soon!